(no subject)
Jan. 14th, 2013 08:12 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
abigailbradyWell, that was supremely pointless.
I am asked some basic questions about my medical history, and examined in a manner that involved no more equipment than a hammer. I mentioned most of the main points that have been scaring me. The general attitude of the consultant was "why are you even here?"
Apparently sleeping better and taking less painkillers will fix my problem with not being able to sleep and being in constant pain. i.e. the same answer the neurologist I saw in the early 2000s came up with. No further referrals, no follow-up, no scans, no tests, just a big fuck-off letter to GP saying that I wasted his time.
WHAT THE FUCK DO YOU THINK I HAVE BEEN TRYING INTERMITTENTLY FOR THE LAST TEN YEARS. THIS SET OF SYMPTOMS IS NEW. IT IS SCARY. I GET PAINS IN THE JOINTS THAT CANNOT BE ADEQUATELY ACCOUNTED FOR BY STRESS OR SHIT THAT I NEED TO TAKE PAINKILLERS FOR. I HAVE NOT BEEN SATISFACTORILY ASSURED THAT SOMETHING LIKE EPILEPSY OR VASCULITIS (WHICH YOU WILL REMEMBER WAS ON MY MRI SCAN THAT THE CONSULTANT REFUSED TO CONSIDER OF ANY IMPORT) HAS BEEN RULED OUT.
I am going to prove this one and for all by doing what he says. This will mean not being functional for quite a while. Funtimes!
I am asked some basic questions about my medical history, and examined in a manner that involved no more equipment than a hammer. I mentioned most of the main points that have been scaring me. The general attitude of the consultant was "why are you even here?"
Apparently sleeping better and taking less painkillers will fix my problem with not being able to sleep and being in constant pain. i.e. the same answer the neurologist I saw in the early 2000s came up with. No further referrals, no follow-up, no scans, no tests, just a big fuck-off letter to GP saying that I wasted his time.
WHAT THE FUCK DO YOU THINK I HAVE BEEN TRYING INTERMITTENTLY FOR THE LAST TEN YEARS. THIS SET OF SYMPTOMS IS NEW. IT IS SCARY. I GET PAINS IN THE JOINTS THAT CANNOT BE ADEQUATELY ACCOUNTED FOR BY STRESS OR SHIT THAT I NEED TO TAKE PAINKILLERS FOR. I HAVE NOT BEEN SATISFACTORILY ASSURED THAT SOMETHING LIKE EPILEPSY OR VASCULITIS (WHICH YOU WILL REMEMBER WAS ON MY MRI SCAN THAT THE CONSULTANT REFUSED TO CONSIDER OF ANY IMPORT) HAS BEEN RULED OUT.
I am going to prove this one and for all by doing what he says. This will mean not being functional for quite a while. Funtimes!
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no subject
Date: 2013-01-14 08:46 pm (UTC)Much sympathy and solidarity and rage. :-( I'm really sorry the person you saw was so incredibly useless.
Also, *empathy* for repeated doctors-not-listening problem (it took me ten years to be diagnosed with M.E., due to much this kind of attitude from HCPs). Except it's even more ridiculous in your case given your consultant even refused to look at actual test evidence. :-S
When you do, finally, get a proper assessment and diagnosis, if you have the energy and time to write a complaint letter, I suspect you would be well within your rights.
no subject
Date: 2013-01-14 09:43 pm (UTC)no subject
Date: 2013-01-15 12:36 am (UTC)Yep, definitely worth complaining.
no subject
Date: 2013-01-15 01:07 am (UTC)Yep, definitely worth complaining.
no subject
Date: 2013-01-14 09:05 pm (UTC)were you given a chance to say what you say here? (IN CAPS)
no subject
Date: 2013-01-14 09:42 pm (UTC)no subject
Date: 2013-01-14 09:24 pm (UTC)no subject
Date: 2013-01-14 09:43 pm (UTC)no subject
Date: 2013-01-14 10:58 pm (UTC)I am MORE than happy to march back to the GP with you and demand a referral to a different neurologist. I agree with what you said on twitter, it might be transdocfail, or even that he's just sexist and sees you as a silly hysterical woman making a fuss about imaginary problems. I would suggest taking a nice cleancut-looking cis man to your next appointment who can shed Magical Man Sparkles on your behalf. *hits heteronormativity with bricks*
no subject
Date: 2013-01-14 11:02 pm (UTC)I've got to do it.
no subject
Date: 2013-01-14 11:04 pm (UTC)no subject
Date: 2013-01-15 04:26 pm (UTC)